December : 2023

"The world has been abnormal for so long that we've forgotten what it’s like to live 

in a peaceful and reasonable climate. If there is to be any peace or reason, 

we have to create it in our own hearts and homes." 

Madeleine L'Engle

this month has not been "peaceful" by most reasonable measurements. another hospitalization with my mom, more uncertainty, stress and sadness in waves. 

and yet.....also peace. 

creating spaces of music and lights and memories and strength and love and compassion right in the middle of a whole lot of messy.

it's the last 2023 blog post on the last day of the last month of the year. I aimed to blog every month of my 50th bday year and I mostly did that.

a New Year:

I'm not much on resolutions and sometimes I wonder if overfocusing on the past serves us all that well. someone said we should "reconcile" more than we resolve: I like that. most of life, really, is reconciling who we've been with who we're becoming. seeking reconciliation with others, through the reconciling love of the Father. 

if we're not careful, Hope can be a pithy goal....for ourselves and others. I've learned to handle hope with sensitivity....not to offer it lightly as a band-aid for problems and sufferings : understanding more that life can chip away at our ability to hang our hopes on much of anything. that's just the truth. but the truth also is that hope for our future isn't something we hang onto in our own strength...it isn't dependent on us: we're fully dependent on the HopeGiver who "does not disappoint". 

all of that to say I am "hopeful" but more curious as we enter 2024....what will happen next? what's around the bend? God has shown me in recent ways that I surely cannot predict some good things....

but life has shown me that I also can't imagine some of the broken places....

I value curiosity just about as much as anything in life. the best and brightest shining people I've known have stayed curious throughout their lives.... if nothing else, I want to always be known as learning, growing, changing, looking with wide open eyes at the hurts and joys and beauty life holds....

it's been a harsh year. I'm weary of always being the one with problems. but that neediness has been met by such kindness and generosity from others....who have helped carry the burdens. in a sense, settling deep into this honest need and fragility has been freeing....

if you have kept reading these rambling thoughts....or have read any of the other 2023 posts....bless you!:) 

Lord have mercy on each of us....on our world...."let there be peace on earth and let it begin with me."

"Peace I leave with you, My peace I give to you; not as the world gives do I give to you. Let not your heart be troubled, neither let it be afraid." (John 14:27) 

*comments deactivated

November : 2023

last day of November thoughts.....

(I'm nothing if not prompt....my steam has definitely run out for this:)

I had intentions of writing up some ideas about identity. One who has reached 50 should know a thing or 2 about this, after all.....

this first picture relates to that.... this was a collage sort of thing from a recent chaplaincy thing. I love stuff like this....not the least bit artsy but enjoy being given space & magazines & glue to create: the "task" was to present who am I as a chaplain: past, present, future. this relates very much to identity themes in general....and (like I said) I'm tired & under the wire now and I'm not going to write about all that....

but one of the clips I added here pretty much embodies my life and career philosophy: "helpful tips for biscuits (and life): 1) Keep Watch 2) Practice doesn't make perfect 3) Don't Skimp 4) Flour Power (ie get your hands dirty) 

draw your own conclusions as you will.....

part of me thinks really hard about identity issues....sees how my own themes have been shaped (for good and for not good) by so many factors outside of my own control. As well as by clear and surrendered to the Spirit choices along the way. every bit of our identity formation matters.....and awareness about it all is important. 

the other part of me increasingly realizes how little any of this matter. after all, our lives are but a vapor. I am steeped daily in this truth:  caregiving in my own home and to those struggling with acute illness. the details of who we are seem small in the scope of this big, messy universe. 

but the same God who painted this sunrise this morning says we matter: speaks that we are engraved in the palms of His hands as He shepherds our pasts, presents, and futures. that's the sort of Love that brings meaning and peace within our stories.

 

October : 2023

ordinary things....

it was the best sort of Louisiana fall day....chilly, cloudy, dreary. my chimes have sounded lovely today. we placed flowers on my grandparents' graves and ate some of the last of my uncle's Italian sausages. our remembering game is strong, moving into this trio of days: Halloween, All Saints, All Souls  - "that thin place in the year that acknowledges how close the worlds are, even when they seem piercingly far apart" (Jan Richardson.) 

a close friend's father passed away this morning. a good, kind man. a difficult loss.

the worlds do seem very close. I feel the pull. 

this world is on fire..….

ordinary things keep us grounded: surrounding myself with nature, with music, with making dinner, doing laundry....seeing a hurt and responding to it. ordinary things keep us holy. show us our own flaws and needs so we're too busy dealing with those to worry about other people's.....

Bridging the holy and the ordinary keeps us real....useable, practical, humble. Cause we don't only see all the flaws....the Spirit helps us see the beautiful places in us....and in others....right in the muck of the brokenness (of the world and in ourselves.)

“The "show business," which is so incorporated into our view of Christian work today, has caused us to drift far from Our Lord's conception of discipleship. It is instilled in us to think that we have to do exceptional things for God; we have not. We have to be exceptional in ordinary things, to be holy in mean streets, among mean people...... that is not learned in five minutes.” (Oswald Chambers)

50 years is not so long but is more than 5 min:) learning in doing, in reading, in observing, in listening, in resting, in thinking hard about some things and choosing not to think so hard at all about a lot of foolish things!! in being surrounded (and loving it!) by alllllll sorts of people (what a privilege). in lighting candles and praying for all who sorrow and struggle in these precarious days....

 

September : 2023

The Gates of Hope

Our mission is to plant ourselves at the gates of Hope

Not the prudent gates of Optimism,

Which are somewhat narrower.

Not the stalwart, boring gates of Common Sense;

Nor the strident gates of Self-Righteousness,

Which creak on shrill and angry hinges

(People cannot hear us there; they cannot pass through)

Nor the cheerful, flimsy garden gate of

“Everything is gonna’ be all right.”

But a different, sometimes lonely place,

The place of truth-telling,

About your own soul first of all and its condition.

The place of resistance and defiance,

The piece of ground from which you see the world

Both as it is and as it could be

As it will be;

The place from which you glimpse not only struggle,

But the joy of the struggle.

And we stand there, beckoning and calling,

Telling people what we are seeing

Asking people what they see.

(Rev. Victoria Safford)

American Song

Imperfect, in struggle, contested, more than one voice at a time. Onward, multi –

American song, American psalm.

A single voice raised, then another. We must tell the truth about our history.

How did we get here and where do we go?

Walk toward freedom. Work toward freedom. Believe in beloved community.

We are not yet close enough to heaven.

Aspire to song. Aspire to the lift

of voices joined to make a mighty noise.

What are the luminous, sacred words?

Courage, evolve, freedom, community, truth, trust, love, peace, yes, why, agape.

American song, American prayer.

All of our voices combined into song. Sing sacred words, true and just.

May this portal be where the light comes in.

(c. 2023 Elizabeth Alexander)

end of the day on the last day of September....i've written a lot this month (for the chaplaincy certification thing.) it was therapeutic in a way....but i'm written out. and woefully aware of my own lacks:) Posting some new and meaningful to me words. 1st reading was posted by a newish fb friend who was one of my favorite counseling professors back in the day. Fb is good for something, i guess! American Song was part of the presentation of the new windows in the National Cathedral (replacing the confederate ones.) i'm astounded by this writing. 

only 3 months left of this year......  
 

August : 2023

it's the end of August. almost the end of summer (thank God). not quite the end of hurricane season (sigh). today I've been 50 for 4 months:) I guess I'm stumbling through the transition well enough...some days better than others.... 
I've been thinking a bit on place...belonging. I only moved back to La as a result of my mom's illness. there was no way to know I'd be back here so long. kinda thought I'd move away at some point. these days my future thinking (a foolish way to spend time really) has me probably staying put here in some shape or fashion. I like it here. I love it here! and it's hard to "start over" (whatever that means) the older one gets....

I've come to think humans will do just about anything to fit in....to feel comfortable. 

I don't feel comfortable much: and most of the time I'm fine with that. I worry about being "all things to all people". I do seem to interact with such a varied span of people! I hope? to be consistently authentic, welcoming, openhearted wherever I am - and with whoever I'm with....but sometimes that leaves me feeling a little homeless myself. (not sure if that sentence makes sense but there it is:)

that homelessness feeling stems from other dynamics, too, of course. that is what it is, too....

How blessed I am to have a safe, loving home. have always had. I know this. in a world of loneliness and overwhelmingly bad news all around....these safe places are sacred. I don't think my faith should have me always looking up for an escape hatch; there's plenty of loving and doing to do here! yet it's true that any Hope we have is grounded in a better tomorrow....with full redemption and no sorrows or suffering. lots of poems/prayers/scriptures on this theme....but my mind traveled back to this old Dottie Rambo song...which also seems to fit my front porch picture pretty well:)

There's a light in the window
And the table's set in splendor
Someone's standing by the open door
I can see a crystal river
So I must be near forever
Lord, I've never been this homesick before

See the bright light shine
It's just about hometime
I can see my Father standing at the door
This world has been a wilderness
I'm ready for deliverance
Lord, I've never been this homesick before

July : 2023

caregiving....

i could type = exhaustion and end this.

and i do not intend to be exhaustive here. too many things to say and too hard to say them.

this is an update of sorts of these past few days of caring for mom. too much to post in a quick fb post. (and will count as my July post!:) this is just a brief look into what is part of our daily life....

the past 7 months (post seizure, additional stroke, death of her two siblings, three hospitalizations) have brought new hardships for mom. she is significantly weaker, weary, and at times confused. (memory issues and similar) 

she seemed more so of all of these the past few days. 

since she came home on Dec. 24th, we have had the help of a home health agency. it feels like a fight to keep that, but so far we have. (the biggest plus of that by far is the godly CNA who helps with bathing needs!)

so on Friday morning just before 8am i spoke with Mom's HH nurse wondering about doing some blood work. He agreed: and reached out to her Dr. for the order. long story short....that order wasn't sent until 4:45pm...too late for it to do any good.

it's debatable if blood work is needed? I know that. I'm certainly not a Dr. to read blood work! but it would have perhaps helped us understand as we went into the weekend if anything "serious" might be happening. 

rather than bloodwork or a visit: the home health care agency and the doctor's office all started "advising" us to take mom to the ER. (can you say cya....)

rather, we continued to check vitals, made sure mom was breathing deeply, and that she was hydrated. and asked people to pray.

an additional issue is that tests show Mom needs O2 added to her CPAP machine; this O2 need has developed in the past few months. we've been working on this for 3 months: a ridiculously unacceptable amt of time for this not to be resolved. this could be at the core of what's causing these concerning symptoms.

so here we are on this sunday afternoon: at home...not in the hospital, thankfully!! Mom seems stable enough....a little better, even.

it doesn't serve any purpose to overreact. nor does it help to angrily blame health care people. on the whole, we've been very fortunate in the kind, appropriate care we've gotten across the years. Of course, there is some incompetence happening here. no doubt. 

We have 23 yrs of experience of reading mom's symptoms. they've always been intense and critical. they're just worse now.

what we do not have is the power to order tests or insure needed care.

would it be any better if there really was true palliative care support available in this country?

idk: because there isn't.

there's some support if you enter hospice. (that's another discussion for another day....because I truly understand the ins and outs of hospice care better than most.)

there's some support if you qualify for medicaid. (which we don't of course.)

i hear there are better supports in some states. But definitely not universal across the country.

I have been hiring a little help in the past few months: that has not been easy or consistent.

Mom seems well: she's been eating icecream & brownies and singing along to a church service:) she has her bible out to read. we're grateful.

she is remarkable.

coffee, candles, rest, and rain are happening here, too:)

I quote again my favorite words for our situation:

"We get by on grace...just not the kind that makes us look good." (Winner)

at 50....i am two years away from when Mom's catastrophic stroke happened to her. 

I'm learning to make peace that there probably isn't a plan b for my life: this is it. and a lot of it has been good. a lot of it has been very very hard.

i used to have some interest in using all that I've learned about caregiving/chronic illness in advocacy (like to congress or something like that....always pretty fuzzy in my mind.) i'm pretty sure congress isn't concerned. 

these days i just want to rest. 

and to keep truly empathizing with the folks I walk beside in chaplaincy (i really do know how all of this feels.)

and to sit on a beach somewhere and let go of responsibility for a long, long time. 

i guess we'll see if any of that happens:)

when i'm able to be out in nature i find it relieves stress....

kind friends brought goodies to church this morning...that's always encouraging.

and the prayers helped, I think.

so we will keep on getting by on grace.....

 

June : 2023

Health...

I have been quite healthy in these 50 years. I don't take that lightly. I have a frontrow seat to illness: my mom's and others'.... so in many ways I have a Good understanding of just how fragile and tenuous our health really is...

about 7 years ago I hurt my foot. banged it up after a weird and unsettling massage (that's a story for another day.) so many details, but the long and short of it all is that after all this time it's still hurting and swollen: many doctors, physical therapists, tests, hopes for it to recover....but it's still not ok. my leg and hip have developed issues and the whole thing (while SMALL in the whole scheme of life) has been very frustrating.

most recently, chiropractor treatments and massages have helped. I have the best insurance currently that I've ever had (thanks to the affordable care act) so I've been accessing needed care more consistently. I saw a new doctor this week, a rheumatologist. this was after some bloodwork showed some AI concerns. it seems unlikely that those are truly concerns for me (thankfully!)....but this new doctor talked a lot to me about the overall affect stress can have on our muscles and psyche. I'm pretty aware of this. sometimes I think I manage it all as well as any person could....but I also live with awareness of the lacks in my life that might offset the extreme hypervigilance and exhaustion that over 20 years of caregiving has included. this new doctor also talked to me about sleep: she used the term "sleep hygiene" which I think is new to me. so I looked it up and have determined to Do Better!! I've started this week:)

there's only so much any of us can do about our health (there's a lot of randomness in it all, in my humble opinion) or about our stress. but I can purposely turn off my ipad and iphone when it's nearing time to go to sleep: can allow my brain to rest from that artificial light. can turn off texting. can pick up a book and my actual bible and benefit from growing my mind and my spirit....

the past 7 months have been brutal. but we've stayed out of the hospital this month! (yay!). my health realities could radically change tomorrow (and so could yours). for now, I've been able to start walking again and have a little more breathing room. I'm taking in very little of the awful news cycles; I'm listening more to calming music and such. I do have a counselor I see now and then. I'm doing things I know to do to treat my weariness and stay as healthy as possible.... 

*I offer these honest thoughts, hoping others might care for themselves better, too. 
*I will be glad when this once a month blogging thing is over:)